A MOTHERS REFLECTION’S ON A DAUGHTERS JOURNEY WITH MULTIPLE SCLEROSIS

​MY Daughter JOY has Multiple Sclerosis, as a single parent I have learned how important it is to have a support system to cope with the stress that accompanies chronic disease.

While the patient is at the center of this chronic illness storm their caretaker’s play an equally important role when it comes to their recovery.

​Below are a few observations on what I’ve learned as a both a mother and a caretaker.

Before Joys M.S. diagnosis she was a happy, funny, energetic and independent person and while she is still that person this disease has undeniability reshaped her reality. I have watched Multiple Sclerosis rob her of any illusions she ever had of being in control of her life. We all have to deal with that reality at some time in our life but when in comes in like a tornado I think it’s different, cancelling plans because you lost the ability to walk is another thing altogether. All the biggest decisions we have to make like work, love, marriage are all up in the air, now the questions are reframed into can I work? Take care of my dog? What am I capable of doing and for how long?

read full article